Comments on: Please help her to smile

By: Let me wash your car (charity event) | Sheylara.com

Let me wash your car (charity event) | Sheylara.com — Sun, 23 May 2010 04:16:29 +0000

[...] Read my blog about it here. [...]

By: Jesta

Jesta — Wed, 15 Oct 2008 01:10:32 +0000

Hi Missy
The post-operative care is tough. Thanks for the info about the way around the splints.

I’m not sure why you were told that you had to have the splints for 3 months. My daughter had her stitches out of her lip in under 2 weeks and we could take the splints off then.

After her palate surgery she needs to have the splints for 4 weeks or more, but it’s not too bad.

It sounds like your idea is a really good one, though. Have you had contact with the Cleft Centre at KKH? If not could we share your idea with them?

Please email me – justynoATgmail.com (the AT should be @)

By: missy

missy — Tue, 14 Oct 2008 23:48:33 +0000

I was just wanting to post this to anyone who has a child with cleft lip or palate. Before your child has surgery, take time to this about your post opertative care. My son had just a cleft lip so he had just one surgery. However the thought of having his arms in stints made me sick. I knew it wouldn’t be good for him. And I imagined it to be harder than the doctors make it seem. I decided to be creative and think of ways around the normal 3 months of arms straight out! I went the animal clinic by my house, I purchased a “lamp shade” medium size for a small dog. I went home trimed it up cut a slit on the side and sewed a slip cover for it out of a sweet little boy flannel. with ties on the side. During the day while he was awake I put it around his neck. Always with my undivided attention, and took the stints off. He loved this!! so did I! I could bend his arms and even cuddle with him! He loved the freedom of moving his arms all around! My doctor told me I should patten the idea! I figured people might think I was crazy! I recently told a mother about this and she was in tears she was so excited to go by one and make her own. Hope this could be of help to anyone reading! As long as they’re hands can’t touch their face the width of the plastic is long enough! And I made a VERY basic slip cover as I am not a seamstress! I only needed one because while he slept in his arm stints- I’d through it in the wash

By: Keith

Keith — Sat, 06 Sep 2008 14:59:59 +0000

I’m so sorry Jesta.I really wish the best for your daughter

By: Sheylara.com » Blog Archive » Making the Dragon Smile

Sheylara.com » Blog Archive » Making the Dragon Smile — Thu, 14 Aug 2008 07:07:06 +0000

[...] a reader got in contact with me after reading my post about cleft lip babies and how we can help [...]

By: Jesta

Jesta — Sat, 09 Aug 2008 13:00:54 +0000

I’m going to add one more comment to this page: In searching the Internet through Google for information about cleft lip and palate in Singapore I came across a whole bunch of sites, some of which were just wrong. Worse they were published under the names of Doctors and Dentists.
So… Please, if you are a parent expecting a child with a cleft lip and palate, contact KK Hospital and ask for the Cleft and Craniofacial Centre. They will be able to provide you with the right information.

By: Jesta

Jesta — Tue, 29 Jul 2008 04:29:51 +0000

In case any other parents drop by… Please contact Sheylara and she will pass you my contact details for a more personal response.

By: Sheylara

Sheylara — Sun, 27 Jul 2008 11:31:22 +0000

(Sorry, Jesta’s responses got caught by my spam filter so they didn’t appear before today.)